Lisa van der Mark is a Dutch deafblind researcher and disability advocate from Mijnsheerenland, South Holland. Born with Usher syndrome, she has become an example of inclusion and perseverance in higher education in the Netherlands and abroad.
Early Life and Education
Lisa van der Mark was born in the Netherlands and grew up in Mijnsheerenland. She was diagnosed with Usher syndrome at the age of twelve, after years of gradual hearing loss followed by progressive vision loss[2]. Despite it, she completed her secondary education and enrolled at Leiden University to study cultural anthropology[1].
Academic Activities
While a student at Leiden University, Van der Mark focused on issues related to disability, accessibility, and cultural perspectives on inclusion. She undertook part of her studies in Washington, D.C., fulfilling a long-held dream of studying abroad[3][4]. Her academic path was supported by adaptive technologies and personal assistance, enabling her to participate in lectures, seminars, and fieldwork[1][3].
Advocacy and Recognition
Beyond her studies, Van der Mark has shared her personal story to raise awareness about Usher syndrome and the broader challenges faced by people who are deafblind. She founded Stichting LISA (Leiden Institute for Sensory Accessibility) to promote understanding, accessibility, and equal opportunities for people with sensory impairments[2]. Her achievements have been recognized in Dutch media as an inspiring example of determination and resilience[3].
- Universiteit Leiden. (n.d.). Lisa van der Mark.
- Stichting LISA. (n.d.). Het verhaal van Lisa.
- Hoeksch Nieuws. (2014, July 11). Felicitatie voor bijzondere prestatie Lisa van der Mark uit Mijnsheerenland met syndroom van Usher.
- Slotboom, A. (2024, May, 14). Doofblinde Lisa maakt haar droom waar in Washington. Algemeen Dagblad.
